Thursday was an eventful day with the biopsy results coming back CLEAN! We also had our Team Snail Light the Night Walk which was fabulous! All of our pictures are added to the Snail Travels slide show below!
Speaking of which, I need snail pictures please!
This is the update I got from my mom in the afternoon Thursday:
Nice additions to the SD team snail Vanessa and JP arrived early bearing new gifts and GF foods she was so happy to see them, then Kim came by bearing tons of wonderful posters made by all her friends at work enough that they could have wallpapered her already covered walls so she picked her favorite three and they now grace the walls too. He “germinator Dr” came by to show her rash to interns saying it was a very angry rash and fever due to antibiotic she said it sure is angry and hot too so sweet. She has bad shakes from the fever and reaction she hates it, kept her up last night so we passed on a shower so far today hoping it will stay calmer. Great news on the biopsy however kept her going to day hoping to stay on track to the road to recovery as designed right now. Dr said he would try to get her pre-registered so we could start conversations regarding testing and timing with transplant team asap. She is all puffy from reaction and hates her swollen face and stomach she actually gained weight due to water retaining etc this is temporary but she does not like it. Seems to be coughing more but Dr says pneumonia looks the same and is ok (if it can be) Hope the walk goes well and there are lots to represent Team Snail!!!!!!
Thursday/Friday midnight:
Well, really late last night I started getting texts that the doctors were concerned because her WBC's jumped from 200 to 1,200 in one day. They said this could be the leukemia coming back already which would mean more chemo and delay the transplant. We would have to see what would happen in the morning. Overnight Valerie's temperature spiked to 104 and she had the shakes really bad. In the morning her blood tests came back showing a jump to 4.2 WBC's and the fever and shakes continued throughout the day. The doctors were saying the leukemia could be back already even though her bone marrow biopsy said clean; they would need to do another one. The doctors said the fever could be from infection, it could be from the WBC's coming back so fast or it could be her reaction to all of the meds so more tests were ordered!
Friday night:
Finally late last night we had some answers. Here is the update my dad sent me:
WBC's at 4.2 up from 1.2 yesterday
Platelets at 22 up from 16 yesterday (without a transfusion)
Hemoglobin at 8.7 up from 8.5 yesterday (without a transfusion)
Dr Belani was much happier today. With the extreme rise in WBC yesterday he was afraid the leukemia had made a roaring comeback. If this were true, the platelets and hemoglobin numbers should have fallen. Since both rose today he is more confident that the rise in WBC is due to good WBC cells being produced. He has never seen someone with such a quick rise in WBC cells before and was concerned. Another indicator was that the percentage of good to bad cells rose today (so less bad cells than yesterday). The slower rise in hemoglobin is because hemoglobin is just slower to come back.
Other news:
Neupogen injections (to promote WBC's production) stopped today.
Valerie is mostly off her neutropenic diet. She can now eat some fresh fruits and vegetables.
Studies will come back Monday to confirm if the WBC cells are good or leukemic. Val's leukemia has a very specific protein pattern so they will now be able to determine if we should be concerned about her huge rise in WBC cells.
Another bone marrow biopsy will be postponed until next week.
More answered prayers!
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