Wednesday:
So just to refresh, this treatment is 6 bags of chemo over 6 days but it is actually 2 bags 12 hours apart one day and then a day off and repeat. She is getting her second bag of the 1st set as I am typing this which is probably why I can't sleep. 1 down 5 to go! Bless Brent's heart, the hospital is so full there are no cots for him so he slept in a chair all night. (For those of you who do not know Brent he is about 6'3") The side effects have not kicked in yet and her swelling and rash have calmed down a bit but not like we were hoping for. The hospital Chaplin visited today and prayed with her about this treatment which helps calm her amongst the obvious benefits. I was able to talk to her today and she sounded pretty good. She was going to try to watch a Friends episode or something. We have found that things that move around a lot like Football (which she loves) and Action movies make her dizzy but comedy's and sitcom type stuff is ok for a while. She requested more GF cheddar crackers from this bakery here in Denver so they will be an the way tomorrow. Her taste-buds are off so a lot of things taste weird and sweet is not going over well but sharp or salty flavors seem to be working for now. It would seem silly to rush ship crackers with any other situation but if she wants crackers from Brazil I would find them right now. Good thing I love Google.
Monday night and Tuesday update from my Mom: Back into the hospital for the Snail.
Valerie was up all night, thank God Brent came over from the airport because he wanted to see her. I was so drained from trying everything to help, his just holding her hands helped, go figure. Still we were all up most of night due to it. When we got here today nurse Gretchen said "Oh my goodness" and ran and got Dr Yager, soon after Dr Wu showed up to see based on his phone call, then Dr Bollon-Landa came in all in first 1/2 hour she was here. They started steroids and decided not to start chemo today due to rash and steroids. Maybe tomorrow will see how she is. Dr Balone still to come in later. After steroids and two doses of Benedryl by IV she is finally feeling under control enough to eat. She ate a pretty good dinner and is tired now. She also has a nite-nite med to help her sleep due to rash as well. Unfortunately they are all full up here tonight and there are some people is really bad pain that are really loud, it breaks my heart that she has to hear it all night even though we have compassion for the others! I checked into my (very marginal) hotel and Lysoled it all up. I plan to take Nyquil and hopefully sleep too. Your Dad is going to go to her apt and get the cold stuff for me due to the fact I carried too much and my back is really hurting! Valerie check back in treat was a long over due pedicure with silver toes, sun and stars on one big toe and crescent moon and stars on other. "One More Step" has become our motto to each other, and she is remaining very brave. She thought it was interesting that her rash was so bad she had to go back to hospital so she didn't even have more grief about coming back. As full as they are she got her same room, we got pictures and cards up, her digital photo frame up immediately to help. The nurses could not belive it when they came in and I had it all up right away. There is an amazing colorful sunset tonight she pointed out and said "Look Mom how beautiful!" She amazes me everyday!!!!!! Pray that meds work and she has a restful night!!!!!! Miss you both, Love you, Mom
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