Wednesday, November 4, 2009

Snail's Schedule

A change in the Snail's schedule came in the last two days and we were waiting for confirmation before we told everyone. Valerie did not have to go back into Scripps Mercy to have another round of consolidation chemo on Wednesday. Her oncologist and transplant doctors met and agreed that her numbers were so good they would rather she was stronger for the irradiation and transplant chemo. We received the results of her latest bone marrow biopsy and it was CLEAN!! As an added treat she does not have to go in every day to be seen as an outpatient but only a couple times a week. This will really help her strength because just the trips to the hospital or doctor's office wear her out.

Here is the tentative schedule. The dates (starting Nov 14) may be moved up a day or two if possible.
Nov. 6 or 9 Valerie and Vanessa sign paperwork at UCSD
Nov. 9 Vanessa preps at UCSD
Nov 14 Valerie preps at UCSD (CTI and body mapping)
Nov 15 or 16 Valerie is inpatient at UCSD
Nov 18 Valerie starts total body irridiation (2x daily for 3 days)
Nov 20 Vanessa starts Neupogen shots
Nov 21 Valerie starts Chemo for 2 days
Nov 23 Valerie gets to rest
Nov 24 & 25 Vanessa gets Stem Cells harvested
(Cells are counted by the lab and immediately put into Valerie)
Nov 26 Valerie has a brand new immune system!

Two prayer requests (besides the obvious):
My Mom is really sick with a nasty cold and cannot be around Valerie or Vanessa AT ALL! Please pray she gets better right away so she can see Valerie and help with her care. The transplant will be here before we know it and we need her to be well. Here is the wonderful photo she sent me from the beach yesterday. A walk on the beach between naps and Kleenex is great medicine!
Valerie is still weak from the last chemo round. She has really bad days and some days that are pretty good. Please pray for strength, her pain, her poor upset tummy and now a new problem has emerged. She is having a problem with her hip, it just doesn't want to work. The doctors have confirmed that it is not neurological and must be bone or muscle related. This is painful and reduces her independence which we all know she cherishes. Please pray this resolves itself quickly!

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