Thursday, April 8, 2010

Happy Easter!


Valerie and Vanessa went to baking for Easter and Spring celebrations!
Cookies for the staff at the doctors offices and hospitals.
Dad delivers them for Valerie. Just a little tiny way to say thank you.

Happy Birthday Snail!

Happy miracle 28th Birthday to our little Snail! Since this birthday was even more special than usual our Dad hatched a plan to surprise Valerie with a few of her favorite things.

As you know Valerie is still on a neutropenic diet which restricts a lot of things including Valerie's favorite frozen yogurt from Bogart Yogurt. Practically torture for a small Snail not to have her favorite treat but Dad's planning skills went into overdrive. After contacting the owner, he found out that Bogart Yogurt tastes amazing because they use high quality ingredients and they CLEAN their machines every day! This might seem obvious but it is not the norm in yogurt world and this is what causes the scare for people with low immune systems. Valerie's doctors approved the treat from this sanitary heaven and the owner told my Dad that she would be happy to open early just for Valerie and Vanessa to come in for their birthday. Then she went one step further and made Valerie's favorite flavor as an extra treat. Strawberry frozen yogurt for all at 10:30am! Thank you, Thank you Bogart Yogurt, you will always be a Team Snail and family tradition!

Now on to the main event! When Valerie was a tiny little girl she loved nothing more than to go fast! Times have not changed and this lady loves beautiful crazy fast Italian cars! In La Jolla there is the most amazing showroom with the best cars in the world including a Bugatti which is about a million dollars and has 1001 horsepower. Every time we past this dealership Valerie strains her neck to see the cars in the window so again Dad had an idea. Symbolic Motor Car Company is San Diego County’s only factory authorized sales dealership and service center for Bentley, Bugatti, Lamborghini, Lotus, and Rolls Royce automobiles. A La Jolla institution since 1985, Symbolic Motor Car Company is a worldwide sales leader in legendary classic, historic, and competition race cars. Where else would you go for our little Snail! Dad contacted Ryan Dohogne the General Manager who was more than gracious to have Valerie and Vanessa come in for their birthday. When they got there Ryan greeted them and had made arrangements for Rick Ahumada, Director of Marketing, to spend some time with the girls. Rick gave them the complete tour including the Bentley's, Bugatti, the previously owned collections including a Ferrari, Porsche Carrera GT and a Ford GT among other fabulous cars. Rick spent the most and the greatest time with Valerie in the Lamborghini area, her favorite cars. Valerie and Vanessa were invited to sit in various cars and were taught all sorts of details that even a car fanatic like Valerie did not know about. This showroom has amazing cars and quite frankly, they are works of art, if you are ever in the market for a car like this we would highly recommend them. However, the cars are not the only thing that makes them special, Rick spent over an hour and a half with Valerie and Vanessa on the last day of the month! For anyone who has been in sales you know what that means and yet Rick went through each car in great detail and made our Team Snail feel as though they were the most important people in the world on that very special day. Valerie told me it was the most fun she can remember having and called it "The Other Happiest Place On Earth". It is always an emotional experience when Valerie can do something new or more than before but for this day, these people made it a wonderful day she will never ever forget.
The Bugatti
Valerie said her favorites of the day were the red and the orange one.
(she knew I had no idea of the names)
The favorite!
Vanessa in the favorite car
Ford GT and the new "Eleanor" from Gone in 60 Seconds. My Dad was DROOLING!
Valerie's new hat that Rick and Ryan gave her.After all the excitement they went for a picnic complete with a great view, spring flowers and yes, their hummingbird friend that always seems to meet them.
Valerie made Vanessa a Peep birthday cake

Monday, March 29, 2010

A Salad for Snail!

It has been a long couple of weeks since I have updated Team Snail, first of all Valerie is doing great and progressing towards her full recovery every day. Her doctors are thrilled with her progress and even let her have a salad last week! As you can see I did not post a picture of a snail with a salad, you don't even want to Google that! For anyone who knows how Valerie ate before you know that the almost vegetarian has had a hard time on a neutropenic diet with no fresh produce allowed. This leafy treat certainly lifted her spirits!

A short time ago I reported the great news that our little Snail was able to walk 4 blocks and then 1/2 a mile and now... 2 hours straight! Valerie is regaining her strength and soon will be bike riding again as soon as we are sure her balance is up to snuff!
In less than 3 weeks Valerie will be off of the steroids she was put on for her body's outspoken opinion about the other trillion drugs she was on and then finally the anti-rejection drugs will start to be tapered off.
Vanessa will be traveling to see Valerie for their 28th Birthday on Wednesday! The girls have never spent their birthday apart and this year will be no exception since obviously this birthday is even more special than usual!

Vanessa and I have been to see Valerie at least once in recent weeks sometimes for a visit and unfortunately this last time for our paternal Grandmother's memorial service. Valerie was given permission to go to the service and I am so grateful that we were all there. Our Uncle Wes wrote a beautiful summary of her life and delivered a similar version at the service. He did a wonderful job and we are grateful for his many gifts, only one of which is public speaking. In a strange way it was good to see family and old friends and we are looking forward to spending more time with our cousins next month when we spend a few days celebrating the life our grandparents made with photographs and souvenirs that have been so careful preserved for us.

Thursday, March 4, 2010

Congratulations Snail!!!!

Congratulations to our little Snail for surviving the first 100 days after a stem cell transplant! It is only up from here!
We have received the results of Valerie's 100 day bone marrow biopsy and .... drum roll please...
the results are "FABULOUS!!!!"
There is NO sign of leukemia and significant bone marrow growth!
I know I don't have to tell Team Snail how amazing these results are! Of course we are guessing that the growth is Vanessa's hot pink stilettos since it is identical it is hard to tell but all signs point to that. Valerie has not had any transfusions, complications or hospital stays since she left the hospital in December and that alone is a huge miracle!
The next step will be to continue tapering off the steroids and as soon as that is complete we can taper off the anti-rejection meds.
Slow and steady wins the race, especially for a Snail!

Congratulations and Thank You to Valerie's dear friend, Danielle who won the Sassy Apron auction! Thank you to Sassy Apron for the extremely generous donation of her artwork!

Saturday, February 27, 2010

Almost 100 days!!!

Team Snail we have almost made it to the 100 day birthday for our Valerie! Valerie had her 100 day bone marrow biopsy last week and we should have the results by her 100th day. This biopsy is one of the most important. It tells us how well the transplant is working, how many good cells and double checks that there are no bad cells. News as soon as we hear....

Don't forget that her 100th birthday is also the end of our Sassy Apron auction! Click here

Thursday, February 18, 2010

Starbucks for the Snail!

Our little Snail had a amazing day today!
Her numbers have been a little jumpy lately which had us a little worried but her doctors assure us it is normal! Just another side effect of a med or normal course for the transplant. Her doctors answered her list of questions and made her feel so much better! How many people can say that? Thank you again to the entire UCSD team, you continue to be amazing!

Probably the most exciting news is that Valerie's doctors told her to go sit on the patio at Starbucks and have her favorite White Chocolate Mocha!!!!! This is amazing, the first outside food and sitting in public! Don't worry to all the protective Mom's out there, my Dad watched very carefully as Valerie's drink was made and the people at Starbucks did not disappoint.
Along with her new "prescription" the doctors told Valerie to walk as much as she can and get out more! Of course within reason, imagine a snail again. Slow and steady so she is working up to walking a 1/2 mile and going out really means walking on the beach not going dancing just yet.
So, Dad and Snail wasted no time and headed to the beach for a picnic. The most amazing part was the hoppy birds and hummingbirds (Valerie's favorites!) came to the picnic. Behind them in a bush was a very fat and happy prego hoppy bird and then a bunch of the most gorgeous hummingbirds that followed them wherever they went. The hummingbirds were the most amazing colors that Dad and Valerie had never seen and so uplifting.

Mom will be back in San Diego for a visit on Saturday, I will be there Thursday and Vanessa the weekend after me so we will have lots to report to Team Snail.

Sunday, February 14, 2010

Happy Valentine's Day!

Team Snail loves you!